Hør Kari Anne Fevang, fortelle om sin erfaring som EUPATI Fellow.
Kari Anne Fevang var EUPATI Fellow og leder av Melanomforeningen, men måtte gi tapt for sin Melanoma sykdom. Familien har gitt tillatelse til bruk av videoen.
EUPATI utdanner profesjonelle brukermedvirkere – Les mer her.
The European Patients’ Academy on Therapeutic Innovation (EUPATI) was launched as a flagship project of the Innovative Medicines Initiative (IMI) in February 2012. It aimed to trigger a major rethink in the way patients and the public understand the medicines development process and their own involvement within. Armed with a deeper understanding, patient experts and advocates are empowered to work effectively with the relevant authorities, healthcare professionals and industry to influence the medicines development process for the benefit of patients. The main objectives of the project were to:
- Develop and disseminate accessible, well-structured, comprehensive, scientifically reliable and user-friendly educational material for patients on the processes of medicines research and development.
- Increase the capacity of “patient experts” and well-informed patients in patient organisations to be effective advocates and advisors in medicines research and development.
- Empower patients to provide appropriate patient-relevant advice and insight to industry, academia, establishments and ethics committees.