Historien

EUPATI Norge

EUPATI Norge ble etablert i august 2016 med Roald Nystad som initiativtager. Han samlet en gruppe med pasient, forskningskoordinator og en representant fra legemiddelindustrien. Gruppen har siden vokst og arbeider for å fremme et nettverk av norske offentlige og private helseaktører med ambisjon om bedre pasientopplæring og brukermedvirkning innen medisinsk forskning og fagutvikling.

Tre norske pasienter har gjennomgått EUPATIs utdanningsprogram og blitt godkjent som EUPATI Fellows, dvs. EUPATI pasienteksperter.

Møt Kari Anne Fevang, EUPATI Fellow og leder av Melanomforeningen

EUPATI utdanner profesjonelle brukermedvirkere – EUPATI Fellows.
Alle kan ta utdanningen på nett i Åpent klasserom https://learning.eupati.eu/

EUPATI Europa

The European Patients’ Academy on Therapeutic Innovation (EUPATI) was funded within Call 3 of the Innovative Medicines Initiative (IMI) from February 2012 to January 2017. It aimed to trigger a major rethink in the way patients and the public understand the medicines development process and their own involvement within. Armed with a deeper understanding, patient experts and advocates are empowered to work effectively with the relevant authorities, healthcare professionals and industry to influence the medicines development process for the benefit of patients.

The main objectives of the consortium, led by the European Patients’ Forum (EPF), which includes patients’ organisations, academic groups, NGOs and pharmaceutical companies were to:

  • Develop and disseminate accessible, well-structured, comprehensive, scientifically reliable and user-friendly educational material for patients on the processes of medicines research and development.
  • Increase the capacity of “patient experts” and well-informed patients in patient organisations to be effective advocates and advisors in medicines research and development.
  • Empower patients to provide appropriate patient-relevant advice and insight to industry, academia, establishments and ethics committees.

 

https://eupati.eu/about-us/history/